Boy, I never thought that I would get the opportunity to write today’s entry. For most of the day, my energy level was about zero. Obviously the chemo plays a big part in that; but it doesn’t help when you visit the bathroom every ½ hour either. Another major issue is that every night from about 4 to 7, the heating system goes into Amazon jungle mode and the temperature must be 85 degrees in here. It is so stifling that you cannot breathe, your clothing gets soaked and so does the bed linens. And there is nothing you can do about it! There is no reliable way to adjust the heat in the room. I think that I am going to have to ask 1 of the nurses to come in and fan me!
I feel better now because later in the day they have started to load me up with so much stuff to make up for the effect of the chemo. All day long when my wife was here, I was a dishrag. Now that she had to leave and go home, I feel a lot better.
My sister came by today to have her blood taken to see if she is a viable bone marrow donor candidate. As I said before it’s only a 1 in 4 shot but you have to try. She says that if she is the donor that I will owe her “big time”. Well I can see that she has neglected to take into account all of the wonderful things that I did for (to) her when we were growing up! I think that if she really puts it all in perspective she will come around to my way of thinking and see that this should just about draw us even!
While I was shaving this morning, the nurse came in and almost had a heart attack! No one told me that I was not allowed to shave! Having little or no white blood cells means that any cut has much less of a chance to heal. So now I will be growing a mustache and a beard. Come to find out, according to one of the nurses, you really have no idea what hair you will lose. Men do not always lose their facial hair – including eyebrows and eyelashes. We’ll see what happens in my case. As an aside, my wife wants me to lose the hair in my ears!
Big event later tonight – the chemo ends!!!!! It’s been 7 days – time flies when you’re having fun! It really has been uneventful – thank God. I wrestled with a little nausea 3 or 4 times but it was fleeting and it did not go beyond that. So a week of waiting now begins in preparation for the bone marrow biopsy next week.
In short, right now I am feeling fine and everything is still on track.
Bob
6 comments:
Hi, you sound up beat which is a good sign even for a old dish rag like yourself. Do you know it is 11 PM and I am just finsihing up with plan work. I must be nuts since I have been at this stuff all day since 7 AM this morning. But I must send a special note to all my favorite Pats fans you aand your son Steve in the form of J E T S Jets, Jets Jets. I am looking forward to see if the pupil can out coach the master. A Jet win will really get the NY fans dreaming of a Giant / Jet superbowl. Please make sure Nancy takes some lovely pictures of you and posts them so we can all see the new Bob. That is it for now I am sure Lorraine will have her own comments for you tomorrow. Take care and do as told as we all continue to hold you for a complete and speedy recovery. Paul
Hi Dad
Good to hear you sound so upbeat. It's realy good that so far your worse symptoms from the chemo have been lethargy. Too bad they don't have a big comfy recliner torest on!! I am anxious tosee what you might look like as a bald man with a long beard- maybe one of those wise men that people supposedly climb mountains for to seek sage advice?? Or better yet, what if you only lose one eyebrow and the opposite ear? You could start a trend!! Keep up your good spirits. We all are praying for you- and Aunt Carole for her help!!
Love,
J
It was great to here your voice this morning, and you made my day by singing "Happy Birthday" to me, the best present of them all!
Do you know I woke up and forgot it was my Birthday? Some how as the ages pass they become less important to many, but to some they are still so important, ask Maddie. She has her lists done years in advance:) I will see you tomorrow. Love Jen
Mr. Johnson,
Glad to see that the week went smoothly for you. A few bouts of nausea is not to bad. As for the heat waves....close your eyes and imagine yourself sunbathing in the Carribean!!
Lori
Hello from New York. You seem to have come through the week of chemo with only few side effects. That's great. Your waking up in the middle of the night as though you are in the tropics reminds me of when I was going through menopause...soaked pajamas, soaked sheets. See, now you can relate to all of us older gals. (Who says no good is coming out of this experience.) You know, you have to tell Nancy that those ear hairs are genetic. And, like our cats, they help to sharpen your hearing. (Nancy, he does so hear you!!) Oh, and happy birthday, Jen! Lorraine
Bob, this blogging this is new to us so you may get more that one that looks the same!! We read your posts daily and are truly inspired by you!! If you can't get those gin & tonics you want perhaps we can smuggle in some $2 Buck Chuck!!! For medicinal purposes only!! You are in our thoughts and our prayers. Bill & Sue
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