Off to the lake in the morning!
Another chance to enjoy the beautiful New Hampshire summer as Labor Day Weekend is upon us and the weather is supposed to be georgeous. Labor Day kind of marks the end of summer even though there are officially 3 weeks left of summer according to the calendar. It's getting darker earlier and cooler in the evenings = all pointing to the fact that fall and winter(ugh!) are approaching.
For us it means that we enjoy 3 days of R & R and go back to Boston on Tuesday to see my oncologist and to get an MRI taken of a swelling in my Adams Apple area. It's been seen by two doctors already who say that it is nothing. But, they just wish to be sure. I've never had an MRI before so this will be a new experience for me. Add it to the list! I've had so many "new experiences" over the past, almost three years that they just seem to be another routine part of my ongoing story.
Meanwhile, life continues apace. Week thirteen of photophoresis is done. Looking at my arms tonight, one could surmise that visible progress has been made. My wife certainly feels that way. I don't wish to jump on the bandwagon just yet, but, for sure, there has been no detrimental effects from the treatment.
Tomorrow morning we pack, we'll leave after lunch and return on Monday in the afternoon.
It's time to enjoy the world as God meant us to...
Bob
August 31, 2011 10:25 PM
Not my update!
I'm doing as well as usual. Nothing is new on the scene. Tomorrow is the end of week 13 of my photophoresis. With 27 treatments under my belt, I will have racked up over $250,000 in treatments costs. Not bad! And when you consider that this will probably extend into November, I'll be pushing over a $500,000 with no end in sight. The physician's assistant keeps insisting that I'm still new in the program and that it's going to take time before noticeable progress can be seen.
Anyway, this is more of an update for my son's condition. He's back at home after being released yesterday afternoon. Do they really know what his issues are? My wife and I think not. But, he is on medication to thin his blood and start to dissolve the clot. However, he also had excess around his lungs that they drained. But the doctors could not collectively agree that there was no problem with what the fluid. One said that there was aproblem while the other said exactly the opposite. So he's at home and we'll just have to wait and see what happens.
Otherwise, my impatience sets in and I wish to get back to some semblance of normalcy. Being tired and weak all the time is not where I want to be. There are things that I wish to do with my life that I just have to postpone because I'm not currently capable of doing them.
At least I have the opportunity to wait...
Bob
I'm doing as well as usual. Nothing is new on the scene. Tomorrow is the end of week 13 of my photophoresis. With 27 treatments under my belt, I will have racked up over $250,000 in treatments costs. Not bad! And when you consider that this will probably extend into November, I'll be pushing over a $500,000 with no end in sight. The physician's assistant keeps insisting that I'm still new in the program and that it's going to take time before noticeable progress can be seen.
Anyway, this is more of an update for my son's condition. He's back at home after being released yesterday afternoon. Do they really know what his issues are? My wife and I think not. But, he is on medication to thin his blood and start to dissolve the clot. However, he also had excess around his lungs that they drained. But the doctors could not collectively agree that there was no problem with what the fluid. One said that there was aproblem while the other said exactly the opposite. So he's at home and we'll just have to wait and see what happens.
Otherwise, my impatience sets in and I wish to get back to some semblance of normalcy. Being tired and weak all the time is not where I want to be. There are things that I wish to do with my life that I just have to postpone because I'm not currently capable of doing them.
At least I have the opportunity to wait...
Bob
August 28, 2011 11:15 PM
The storm that wasn't!
At least for us! I know that there was extensive damage up and down the east coast. Here in New Hampshire, the western part of the state suffered a lot of flooding. Fortunately, where we are, there was little wind and some rain. We never lost electricity - although there are several hundred thousand without electricity in our state. All in all, we were very fortunate.
It's hard to believe that they cancelled school for tomorrow on Friday without waiting to assess what, if any, damage there might be. Tomorrow is suposed to be a beautiful day.
What did we do all day? In anticipation of lots of rain and elevated winds, my wife did not wish to go to church - so we stayed home and played Scrabble all afternoon! Later on, it was movie time on TV.
On to much more parochial interests. They let my son come home from the hospital yesterday. It appears to be premature as he still suffers extreme pain from the blood clot. Tomorrow, he goes for more testing with the expectation that they may resubmit him. They are having problems dissolving the clot which raises our concerns every day. What are the risks that he faces?
As for me, no changes. The lenses basically work as advertised. However, the left one tends to be cloudy while the right one seems to have progressed beyond that point. It seems funny to have my right eye be the good eye when the lenses are in and to have my left eye be the good one when they are removed.
Still no noticeable improvement with the photophoresis results from what I experienced earlier.
Time will tell...
Bob
At least for us! I know that there was extensive damage up and down the east coast. Here in New Hampshire, the western part of the state suffered a lot of flooding. Fortunately, where we are, there was little wind and some rain. We never lost electricity - although there are several hundred thousand without electricity in our state. All in all, we were very fortunate.
It's hard to believe that they cancelled school for tomorrow on Friday without waiting to assess what, if any, damage there might be. Tomorrow is suposed to be a beautiful day.
What did we do all day? In anticipation of lots of rain and elevated winds, my wife did not wish to go to church - so we stayed home and played Scrabble all afternoon! Later on, it was movie time on TV.
On to much more parochial interests. They let my son come home from the hospital yesterday. It appears to be premature as he still suffers extreme pain from the blood clot. Tomorrow, he goes for more testing with the expectation that they may resubmit him. They are having problems dissolving the clot which raises our concerns every day. What are the risks that he faces?
As for me, no changes. The lenses basically work as advertised. However, the left one tends to be cloudy while the right one seems to have progressed beyond that point. It seems funny to have my right eye be the good eye when the lenses are in and to have my left eye be the good one when they are removed.
Still no noticeable improvement with the photophoresis results from what I experienced earlier.
Time will tell...
Bob
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