It's a real early entry for today as we are headed to friends in a little while to play bridge and catch up on things that have happened over the last several months. It sounds like there won't be much bridge playing with all that's gone on.
You are spared another episode in the long running prescription saga since today is Saturday and, of course, you are spared tomorrow as well.
It was nice most of the day and I spent some time outside in the late afternoon as the clouds rolled in and kept me from being exposed to too much sun. My wife buzz cut my hair today and I think that she is getting better and better at it with each new attempt. Not that there is much to really do for a buzz cut but I admit that you really have to keep it down as the longer it gets the more puff ball looking you get. Obviously, visits to a barber shop are out of the question for quite a while and, if I continue with the current look, I'll never have to go back again!
Other than a day of eating and reading, it was quiet as usual and I am still progressing well. Every once in a while, I hear stories of other leukemia patients who suffer from one or more side effects of the chemotherapy or the bone marrow transplant and I thank God that I have eluded them all. I'm looking forward to being off the immuno-suppressants in a few months so that I can limit my medication battles.
It feels strange to be doing this so early but I won't have to take the time to do it later when I might not feel so inclined after we get home.
So, until tomorrow...
Bob
July 10, 2009 10:45 PM
It was a beautiful day - weatherwise!
I really wish that I could drink, however, as my prescription provider is driving me nuts. My prescription is now "in process". But nobody knows what that means! They still supposedly have to check with my insurance provider to make sure that the drug is covered. Mind you, they have already filled 2 prior prescriptions for the exact same drug. Go figure! At least several of the people that I have talked to have finally accepted the fact that I am not on Medicare!
When I asked them how I was supposed to know what they resolved with my insurance company they had no answer. When, or if, this prescription will ever be filled is anybody's guess. But I am supposed to call them on Monday to get an update! So, currently I have this three month drug prescription that cannot be filled at my local pharmacy because it is for 3 months and my 3 month provider won't fill it!
Since I had a prior prescription for a lesser amount filled at my local pharmacy, I think that I will try to get it refilled there.
This is horrible! Someone's bureaucratic screw up prevents me from getting the drugs that I absolutely need. You would never think that getting the medication that you need would be such an issue. I guess that not having had to take any medications prior to this has left me totally ignorant of what a number of you people have to go through all the time . For me, this is coming to a defineable end. For you, you have my deepest sympathies.
Other than being on the phone to try to iron out my medication issue, we went to the Manchester Country Club for dinner tonight with some friends and had a great time eating outside on the patio. It makes one really appreciate the summer weather at times like this because we have had so little of it.
As usual, I'm still feeling fine...
Bob
I really wish that I could drink, however, as my prescription provider is driving me nuts. My prescription is now "in process". But nobody knows what that means! They still supposedly have to check with my insurance provider to make sure that the drug is covered. Mind you, they have already filled 2 prior prescriptions for the exact same drug. Go figure! At least several of the people that I have talked to have finally accepted the fact that I am not on Medicare!
When I asked them how I was supposed to know what they resolved with my insurance company they had no answer. When, or if, this prescription will ever be filled is anybody's guess. But I am supposed to call them on Monday to get an update! So, currently I have this three month drug prescription that cannot be filled at my local pharmacy because it is for 3 months and my 3 month provider won't fill it!
Since I had a prior prescription for a lesser amount filled at my local pharmacy, I think that I will try to get it refilled there.
This is horrible! Someone's bureaucratic screw up prevents me from getting the drugs that I absolutely need. You would never think that getting the medication that you need would be such an issue. I guess that not having had to take any medications prior to this has left me totally ignorant of what a number of you people have to go through all the time . For me, this is coming to a defineable end. For you, you have my deepest sympathies.
Other than being on the phone to try to iron out my medication issue, we went to the Manchester Country Club for dinner tonight with some friends and had a great time eating outside on the patio. It makes one really appreciate the summer weather at times like this because we have had so little of it.
As usual, I'm still feeling fine...
Bob
July 9, 2009 10:55 PM
I was chastised today by a friend that my posting for yesterday was "late". I really do not have any set time that I strive for. But, yesterday, I was watching two movies on TV that ran a little late. I suppose that I should endeavor to make each day's entry so very intriguing that each of you won't want to go to bed until you have read it.
Maybe I need to leave each entry by placing myself in some sort of a predicament that seems impossible to escape from so that the next night you will be drawn to see how I manage to get out of it. The only predicament that I currently have is getting my prescription on time. Today has provided no further update so I'll have to bug them tomorrow. I only have 9 days left of the current prescription so the challenge is on.
I did a couple of small projects today as I continue to try to make good use of my time. I know that for may in my situation this would be impossible - I am so thankful that that is not the case for me.
All in all, it was a good day. Any day that is uneventful is a good day.
I hope that this posting is early enough for most of you...
Bob
Maybe I need to leave each entry by placing myself in some sort of a predicament that seems impossible to escape from so that the next night you will be drawn to see how I manage to get out of it. The only predicament that I currently have is getting my prescription on time. Today has provided no further update so I'll have to bug them tomorrow. I only have 9 days left of the current prescription so the challenge is on.
I did a couple of small projects today as I continue to try to make good use of my time. I know that for may in my situation this would be impossible - I am so thankful that that is not the case for me.
All in all, it was a good day. Any day that is uneventful is a good day.
I hope that this posting is early enough for most of you...
Bob
July 8, 2009 11:15 PM
Ah, yes! My prescription provider made a mistake! They never should have forwarded my prescription on to the other provider. They did so under the mistaken belief that I was on Medicare! When I stated this fact to the fellow on the phone last night, he got very uppety with me and stated that because my drug was classified as a class D Medicare drug - they always did this! When I stated that a prior prescription for this same drug was not handled this way, he said that that was the way that they do it.
So now my original provider has been advised that they are to fill the prescription as written. They have yet to do so as of a few minutes ago. So, tomorrow will require another phone call to straighten out the current situation.
Getting prescriptiond filled should be an easy task. Whatever happened to just going to the drug store, giving them the prescription, and walking away with your medication? I suppose that that is just too "inefficient" a system in this modern day and age of the internet. This whole process gives me pause to think about those people who do not have computers and access to the internet - what are they supposed to do?
Anyway, other than this ongoing battle, life is good even though the weather is not. I am feeling better and better each day. When I am through with this whole experience, I think that I am going to wonder why it took me a year-and-a-half to get back on my feet when I felt so good all the way along.
But, doctor's orders are doctor's orders, so I am doing as I have been told.
It's Wednesday and I must admit that not driving to Boston is becoming very easy to adapt to.
Another semi-uneventful day has come to an end and I inch ever closer to getting my life back...
Bob
So now my original provider has been advised that they are to fill the prescription as written. They have yet to do so as of a few minutes ago. So, tomorrow will require another phone call to straighten out the current situation.
Getting prescriptiond filled should be an easy task. Whatever happened to just going to the drug store, giving them the prescription, and walking away with your medication? I suppose that that is just too "inefficient" a system in this modern day and age of the internet. This whole process gives me pause to think about those people who do not have computers and access to the internet - what are they supposed to do?
Anyway, other than this ongoing battle, life is good even though the weather is not. I am feeling better and better each day. When I am through with this whole experience, I think that I am going to wonder why it took me a year-and-a-half to get back on my feet when I felt so good all the way along.
But, doctor's orders are doctor's orders, so I am doing as I have been told.
It's Wednesday and I must admit that not driving to Boston is becoming very easy to adapt to.
Another semi-uneventful day has come to an end and I inch ever closer to getting my life back...
Bob
July 7, 2009 11:10 PM
Well, the rain made a hasty return. Another cold, raw, rainy summer(!) day.
We didn't do much though we went to friends to have dinner. They wanted to serve their beer barbecued chicken and it was delicious. A pleasant evening of conversation and good food. I'm slowly getting back into the swing of things here. These things are the little gems in life. We have to remember that it's people who are important - not things.
Today was the day that my on-line prescription provider was supposed to ship my medication. As expected, it didn't happen! They have sent it on to another provider who now is supposed to fill it. Meanwhile, my current prescription is running out. As expected, this whole process is beginning to get a bit dicey. You leave what you think is enough time to get your refill and they delay so much that it's not enough. So, tomorrow I have to call the other provider to see what the status of my order is. Is this preparing us for the joys of national health care?
Other than being concerned about running out of one of my immuno-suppressants, I'm still feeling great!
I'll keep you posted...
Bob
We didn't do much though we went to friends to have dinner. They wanted to serve their beer barbecued chicken and it was delicious. A pleasant evening of conversation and good food. I'm slowly getting back into the swing of things here. These things are the little gems in life. We have to remember that it's people who are important - not things.
Today was the day that my on-line prescription provider was supposed to ship my medication. As expected, it didn't happen! They have sent it on to another provider who now is supposed to fill it. Meanwhile, my current prescription is running out. As expected, this whole process is beginning to get a bit dicey. You leave what you think is enough time to get your refill and they delay so much that it's not enough. So, tomorrow I have to call the other provider to see what the status of my order is. Is this preparing us for the joys of national health care?
Other than being concerned about running out of one of my immuno-suppressants, I'm still feeling great!
I'll keep you posted...
Bob
July 6, 2009 11:25 PM
Back home again!
But everyone was glad that I was in such good health that I could go away for a few days and have no problems. The only thing that I missed enjoying was an alcoholic libation or two over the 3+ days.
It was nice to see a perfect weather day - no wind and lots of sun. Water activities(boat rides, jet skiing, swimming, kayaking, fishing, etc.) abounded for the kids today and that was a joy to see. It's nice to be young isn't it! For us older folks it was conversation, eating, and crossword puzzles.
The kids even lit off fireworks last night but my sister-in-law's dog was so bothered by the noise and spectacle that they had to terminate them early.
I am feeling great and I was a good boy and watched my exposure to the sun so that I did not get a sunburn. Thus no one would allow me to participate in any of the water activities. The bright sun reflecting off the water would have been too much. After looking at my son-in-law who got really burned from sitting out most of yesterday in the sun - I wanted no part of that!
Many thanks go out to my brother-in-law and sister-in-law for putting up with us from Friday until today.
So, tonight it's back in our own bed - that's always a joy.
It will always be a 4th of July to remember...
Bob
But everyone was glad that I was in such good health that I could go away for a few days and have no problems. The only thing that I missed enjoying was an alcoholic libation or two over the 3+ days.
It was nice to see a perfect weather day - no wind and lots of sun. Water activities(boat rides, jet skiing, swimming, kayaking, fishing, etc.) abounded for the kids today and that was a joy to see. It's nice to be young isn't it! For us older folks it was conversation, eating, and crossword puzzles.
The kids even lit off fireworks last night but my sister-in-law's dog was so bothered by the noise and spectacle that they had to terminate them early.
I am feeling great and I was a good boy and watched my exposure to the sun so that I did not get a sunburn. Thus no one would allow me to participate in any of the water activities. The bright sun reflecting off the water would have been too much. After looking at my son-in-law who got really burned from sitting out most of yesterday in the sun - I wanted no part of that!
Many thanks go out to my brother-in-law and sister-in-law for putting up with us from Friday until today.
So, tonight it's back in our own bed - that's always a joy.
It will always be a 4th of July to remember...
Bob
July 5, 2009 11:35 PM
It ended up being a beautiful day. Though it was clear all day, the wind was really intense this morning making it somewhat difficult to sit outside. However, we did got for a walk this morning with our two grandchildren. That was really nice. Later in the day the wind subsided and it really was nice to sit out by the fire as the sun set over the lake.
As with last night, you could see fireworks displays all across the lake. At night, it makes for a wonderful sight. Otherwise, it was a relaxing day of reading and conversation. Tomorrow we go home as the weather is still supposed to be perfect once again.
It still is a little tough to stay out of the sun - especially on a day like today because it was so nice and warm in the sun. But I must - so I will. I have heard of several leukemia sufferers who have developed skin diseases from being out in the sun and I don't want that to happen to me!
I still feel great and I'm another day closer to full recovery. Even though there is still a long way to go, I can certainly look back and see that I have come an awfully long way. Yesterday was 8 months from the day that I entered the hospital and there are less than 8 months to go until my 1 year transplant anniversary so I am more than half way there. It's hard to imagine.
My last night at the lake for now...
Bob
As with last night, you could see fireworks displays all across the lake. At night, it makes for a wonderful sight. Otherwise, it was a relaxing day of reading and conversation. Tomorrow we go home as the weather is still supposed to be perfect once again.
It still is a little tough to stay out of the sun - especially on a day like today because it was so nice and warm in the sun. But I must - so I will. I have heard of several leukemia sufferers who have developed skin diseases from being out in the sun and I don't want that to happen to me!
I still feel great and I'm another day closer to full recovery. Even though there is still a long way to go, I can certainly look back and see that I have come an awfully long way. Yesterday was 8 months from the day that I entered the hospital and there are less than 8 months to go until my 1 year transplant anniversary so I am more than half way there. It's hard to imagine.
My last night at the lake for now...
Bob
Subscribe to:
Posts (Atom)
