Weatherwise so-so but foodwise so good!
My mother-in-law treated us to lobster, steamers, and the works for lunch. A great meal, but messy meal. I guess that she's angling for another visit! It was really nice of her and it adds to the atmosphere of this Mother's Day weekend. So, we'll invite her back for next Mother's Day!!!!
Seriously, though, everything is progressing well and the countdown is now less than 20 days - just moving right along.
Again, not much to say except that as each of these occasions occur I am extremely fortunate to be around to observe them once more and, hopefully, many more times as well.
Thank you, God...
Bob
May 8, 2009 10:15 PM 20 days to go
It was a beautiful day weatherwise.
With Mother's Day being Sunday, my wife picked up my mother-in-law and she will be here with us for the weekend. It's the first time that she has stayed with us since my illness began and I know that it means a lot to her to see that I am doing well. We talked a little bit today about how she orients her life at 91 years young.
For her, it's all goal oriented existence and, as time goes by, new goals always seem to emerge to replace the ones that have been achieved. For example, when she turned 90, her goal was to see her youngest grandchild graduate from college. This will occur next Saturday(the 16th). Now that goal has been replaced by her looking forward to my full recovery sometime in 2010. It was a rather moving moment for me when she said that that was the one thing that was going to keep her going in the year to come.
And, I am still doing very well - looking forward to the weekend and being here to help my mother-in-law celebrate another Mother's Day.
I think that's about it for today...
Bob
With Mother's Day being Sunday, my wife picked up my mother-in-law and she will be here with us for the weekend. It's the first time that she has stayed with us since my illness began and I know that it means a lot to her to see that I am doing well. We talked a little bit today about how she orients her life at 91 years young.
For her, it's all goal oriented existence and, as time goes by, new goals always seem to emerge to replace the ones that have been achieved. For example, when she turned 90, her goal was to see her youngest grandchild graduate from college. This will occur next Saturday(the 16th). Now that goal has been replaced by her looking forward to my full recovery sometime in 2010. It was a rather moving moment for me when she said that that was the one thing that was going to keep her going in the year to come.
And, I am still doing very well - looking forward to the weekend and being here to help my mother-in-law celebrate another Mother's Day.
I think that's about it for today...
Bob
May 7, 2009 10:25 PM 21 days to go
Only 3 weeks left! The days will go by quickly now!
Weatherwise, today was basically a washout so that I did not get an opportunity to go outside and walk. The lousy weather for the week kind of gets me down because it's really nice to get outside for a change of pace.
But one nice thing happened for the day. A friend that we have not seen for a while called and invited us over to their place to play bridge. Obviously, that's a major no-no, so we invited them over for Monday afternoon. It'll be fun to play again as we haven't done this since January. Other friends want to come over and play cribbage which we have not done in years. It will be good to get the old mind working again.
No change on the medical front which is very good. I still feel at times like there is nothing wrong with me because things have gone so well. And I still wonder what lies in store for me once I am back on my feet again.
Let's keep advancing on to the next milestone...
Bob
Weatherwise, today was basically a washout so that I did not get an opportunity to go outside and walk. The lousy weather for the week kind of gets me down because it's really nice to get outside for a change of pace.
But one nice thing happened for the day. A friend that we have not seen for a while called and invited us over to their place to play bridge. Obviously, that's a major no-no, so we invited them over for Monday afternoon. It'll be fun to play again as we haven't done this since January. Other friends want to come over and play cribbage which we have not done in years. It will be good to get the old mind working again.
No change on the medical front which is very good. I still feel at times like there is nothing wrong with me because things have gone so well. And I still wonder what lies in store for me once I am back on my feet again.
Let's keep advancing on to the next milestone...
Bob
May 6, 2009 10:55 PM 22 days to go
It was another great Wednesday!
My counts are great. So great that there is no reason not to start the immuno-suppressant weaning process next week. The way that it is going to work is that they wean me off of one of the medications and, when that is done, they wean me off of the second one. I asked the doctor what the difference was between the 2 drugs and he said that they both accomplish the same thing but they do it in different ways.
Early on, the doctor gave me a pamphlet and information regarding taking an experimental drug as part of a clinical trial should I suffer from graft vs host disease. Since that has not happened, there has been no mention of the trial. I must admit that the side effects from the drug were a little disconcerting and I was somewhat ambivalent about taking part in the trial. Thank God, there is no decision to make.
Each visit with the doctor goes pretty quick as there is nothing of any importance going on and the doctor is very pleased that that continues to be the case.
Now we're down to only 3 more weekly visits with the visit in 2 weeks including the removal of my Hickman catheter.
Things are happening on the medical front - but there still won't be a lot of changes on the home front.
I have no complaints - life is good...
Bob
My counts are great. So great that there is no reason not to start the immuno-suppressant weaning process next week. The way that it is going to work is that they wean me off of one of the medications and, when that is done, they wean me off of the second one. I asked the doctor what the difference was between the 2 drugs and he said that they both accomplish the same thing but they do it in different ways.
Early on, the doctor gave me a pamphlet and information regarding taking an experimental drug as part of a clinical trial should I suffer from graft vs host disease. Since that has not happened, there has been no mention of the trial. I must admit that the side effects from the drug were a little disconcerting and I was somewhat ambivalent about taking part in the trial. Thank God, there is no decision to make.
Each visit with the doctor goes pretty quick as there is nothing of any importance going on and the doctor is very pleased that that continues to be the case.
Now we're down to only 3 more weekly visits with the visit in 2 weeks including the removal of my Hickman catheter.
Things are happening on the medical front - but there still won't be a lot of changes on the home front.
I have no complaints - life is good...
Bob
May 5, 2009 11:25 PM 23 days to go
Ah!! Cinco de Mayo. Another drinking holiday for which I cannot drink. More importantly, there are only 23 days to go. I don't think that I'll be able to drink at that point either - but at least the food restrictions will be gone.
A rather lousy spring day today - cool and rainy. So a day to stay in and read, work on jigsaw puzzles, watch some TV, etc.
Tomorrow being Wednesday, we'll be up at 5 AM and out the door by 5:30. But it's well worth it when we can get back home by 9:00. And, of course, for me it's the only social life that I have so Wednesdays are rather important to me.
Everything is still on course and I can hardly wait to begin the weaning of the immuno-suppressants as it signifies another major step on my road to recovery.
All for now and, as usual, I'll fill you in tomorrow night with all the happenings of the day...
Bob
A rather lousy spring day today - cool and rainy. So a day to stay in and read, work on jigsaw puzzles, watch some TV, etc.
Tomorrow being Wednesday, we'll be up at 5 AM and out the door by 5:30. But it's well worth it when we can get back home by 9:00. And, of course, for me it's the only social life that I have so Wednesdays are rather important to me.
Everything is still on course and I can hardly wait to begin the weaning of the immuno-suppressants as it signifies another major step on my road to recovery.
All for now and, as usual, I'll fill you in tomorrow night with all the happenings of the day...
Bob
May 4, 2009 10:50 PM 24 days to go
It's getting near time to reorder some of my medications but I'll have to speak to the doctor on Wednesday to get an idea of how the upcoming weaning from my immuno-supressants is intended to go.
As usual, a quiet day -I'm still feeling fine and I fully expect it to continue this way.
As it appears that I am going to pull through all of this, periodically I now begin to think about how I am to put this whole experience to good use. I suppose that I should let God lead me in this regard as opposed to my trying to force myself into something. But it will be hard to sit back when I will have been sitting back for almost a year and a half at that time.
Well, another day is now behind me and I am closer to getting back onto my feet again...
Bob
As usual, a quiet day -I'm still feeling fine and I fully expect it to continue this way.
As it appears that I am going to pull through all of this, periodically I now begin to think about how I am to put this whole experience to good use. I suppose that I should let God lead me in this regard as opposed to my trying to force myself into something. But it will be hard to sit back when I will have been sitting back for almost a year and a half at that time.
Well, another day is now behind me and I am closer to getting back onto my feet again...
Bob
May 3, 2009 9:20 PM 25 days to go
Wow! Three quarters of the way there! The days are really moving forward quickly.
My brother-in-law and sister-in-law visited today after returning from Aruba yesterday. Of course, we talked about their trip. My sister-in-law felt kind of guilty about going when she could be here at home helping those of us in need. But my take has always been that life must go on for those who are not ill. Everyone needs a break - otherwise you ultimately do damage to yourself and are of no benefit to anyone.
We did take a walk in the afternoon even though it was a little chilly. In fact, this whole week promises to be combination of rainy and chilly so there will not be a lot of outside activities. But, as usual, I feel fine.
As I have said over the past few days, there is not much to share because everything still continues without incident - a wonderful way to be!
Another week or so and things will start happening again as I begin to ramp down on some of my medications. I can hardly wait...
Bob
My brother-in-law and sister-in-law visited today after returning from Aruba yesterday. Of course, we talked about their trip. My sister-in-law felt kind of guilty about going when she could be here at home helping those of us in need. But my take has always been that life must go on for those who are not ill. Everyone needs a break - otherwise you ultimately do damage to yourself and are of no benefit to anyone.
We did take a walk in the afternoon even though it was a little chilly. In fact, this whole week promises to be combination of rainy and chilly so there will not be a lot of outside activities. But, as usual, I feel fine.
As I have said over the past few days, there is not much to share because everything still continues without incident - a wonderful way to be!
Another week or so and things will start happening again as I begin to ramp down on some of my medications. I can hardly wait...
Bob
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