The only show in town!
Today marked a first for me as I was the only one getting a photophoresis treatment this morning. It was really quiet. The upside, of course, was the individualized treatment that I got. It makes you feel really special when you have four nurses crowding around you looking for something to do.
It's been seven weeks now and I can't say that I've found any real major changes to indicate that the treatment is working. As I said before, they use eight weeks as the starting point. So we'll see what happens.
Tonight we got to watch two of my granddaughters perform in a show at our local live performance theater in Manchester. It was the culmination of their two week camp at the theater and it really was a well done performance for children who are basically pre-teen and who have had on 9 days to rehearse for it. The two girls did really well. Maybe we have another Miley Cyrus(or two) in our midst!
Talking with the girls after the show, they were so animated and full of viatality as they discussed all the things that they want to do in life - play World Cup level soccer, go to college, start their own restaurant business, etc. I'm not sure how much of that I will be able to see, but it's great to see that they have dreams and goals and gives all of us a focus for the future as we strive to help them achieve their ambitions. It's especially significant when you realize that just over four years ago one of them coded twice and almost died. Living on borrowed time for me is nothing like the borrowed time that my granddaughter is enjoying. She is a remarkable child in many ways. One can only assume that God has a fantastic plan for this young lady.
It will be quiet for a few days until Tuesday when I go for round two of the scleral lens regimen. Meanwhile, there is nothing for me to do other than to practice opening my eyelids so that I can fit the devices(their word - not mine) in my eyes each and every time.
No rising at 5 AM Friday morning. Thank God...
Bob
July 18, 2011 11:55 PM
A look at the future!
Today was the first of my scleral lens appointments. It involved some fitting time(for comfort) and getting some readings for vision correction. I wore a "practice" pair of lenses for about an hour. But they were not the proper prescription so my vision was blurry. However, it was possible to correct my vision to 20:20 including my right eye which has the scar on it from the cornea injury that I got somewhere along the way. It was interesting to hear from the doctor that I should have felt some pain whenever the injury occurred - but, quite honestly, I never felt any pain at any time. Currrently, I have a little spot on my left eye now that needs attention. My doctor, once again, said that I should feel some pain - but, here again, it's not happening.
I also underwent my first training session for inserting and removing the lenses from my eyes. With the left eye issue, we only worked on the right eye. It's going to take a while to get used to putting them in and taking them out because it's not done like regular contacts. You have special devices to assist you in the process. More importantly, you must open your eyes quite wide because the lenses are bigger than normal contact lenses. I succeeded a few times once I got used to stuffing something into my eye which took a few minutes to get used to. I thought that that would be the big issue. However, the issue is that I must open my eye more fully to allow for room to properly insert the lens. Next Tuesday the process continues with the first crack at lenses that have been designed for me.
Needless to say, with my left eye issue, I got more drops and ointments for my eyes. I don't think that there is an eye product out there that I don't use! However, if all goes well here, I get back to 20:20 vision and I won't need to wear glasses. I'm looking forward to it.
Meanwhile, snother small concilation is that fact that on August 1st the cost for all of this goes from $7600 to $10000! Lucky me! I got in just under the wire.
Our weekend was great with our friends from New York. We do what older folks do - eat, watch movies, and shop! But it is always fun to catch up with what's going on in other's lives and allow them the time to do the same with you.Come October, we plan to go back down there.
Wednesday starts week 7 of the photophoresis treatments and we should begin to start to look to see if there is any improvement. It's hard to believe that 6 weeks have already come and gone. Time seems to fly so fast, in another month it will be two and half years since my bone marrow transplant.
It's been two and a half years that I would not have had otherwise - maybe that's why it seems to fly by so fast.
I am grateful for each day and what it brings.
Life is good...
Bob
Today was the first of my scleral lens appointments. It involved some fitting time(for comfort) and getting some readings for vision correction. I wore a "practice" pair of lenses for about an hour. But they were not the proper prescription so my vision was blurry. However, it was possible to correct my vision to 20:20 including my right eye which has the scar on it from the cornea injury that I got somewhere along the way. It was interesting to hear from the doctor that I should have felt some pain whenever the injury occurred - but, quite honestly, I never felt any pain at any time. Currrently, I have a little spot on my left eye now that needs attention. My doctor, once again, said that I should feel some pain - but, here again, it's not happening.
I also underwent my first training session for inserting and removing the lenses from my eyes. With the left eye issue, we only worked on the right eye. It's going to take a while to get used to putting them in and taking them out because it's not done like regular contacts. You have special devices to assist you in the process. More importantly, you must open your eyes quite wide because the lenses are bigger than normal contact lenses. I succeeded a few times once I got used to stuffing something into my eye which took a few minutes to get used to. I thought that that would be the big issue. However, the issue is that I must open my eye more fully to allow for room to properly insert the lens. Next Tuesday the process continues with the first crack at lenses that have been designed for me.
Needless to say, with my left eye issue, I got more drops and ointments for my eyes. I don't think that there is an eye product out there that I don't use! However, if all goes well here, I get back to 20:20 vision and I won't need to wear glasses. I'm looking forward to it.
Meanwhile, snother small concilation is that fact that on August 1st the cost for all of this goes from $7600 to $10000! Lucky me! I got in just under the wire.
Our weekend was great with our friends from New York. We do what older folks do - eat, watch movies, and shop! But it is always fun to catch up with what's going on in other's lives and allow them the time to do the same with you.Come October, we plan to go back down there.
Wednesday starts week 7 of the photophoresis treatments and we should begin to start to look to see if there is any improvement. It's hard to believe that 6 weeks have already come and gone. Time seems to fly so fast, in another month it will be two and half years since my bone marrow transplant.
It's been two and a half years that I would not have had otherwise - maybe that's why it seems to fly by so fast.
I am grateful for each day and what it brings.
Life is good...
Bob
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