August 16, 2011 10:10 PM

Improvement!

At least that what it seems like. Both my wife and I feel that the skin on my arms and legs is getting softer. Tomorrow starts week 11 with the photophoresis treatments - so the timeframe is about right to start to show some signs that the treatment is working. Of sourse, even after 11 weeks, it's still somewhat early in the estimation of some of the medical folks.

As for my eyes, I did manage to get the lenses in with only two tries for a second time. But I have to admit that my left eye always seems more difficult than the right one for some reason. As for the cloudiness, there seems to be no rhyme or reason as to why it is better or worse from one day to the next. Some days have been pretty good - I would never say perfect, however, Other days, I am constantly putting in drops to clear them up. On Saturday, I only wore them for an hour because they hurt. But, since then, the pain issue really hasn't surfaced again.

As for my life in general, it's been very quiet. Since we cannot take advantage of the summer weather to do anything because of my treatments and the after effects of being somewhat tired and weak - this summer is going to be somewhat lost with regard to any sort of a vacation or time away. But, the idea is to be able to better enjoy the summers to come and I tyhink that we are on the right track.

All is not lost, however. We still go to church, we still visit friends, we still see the grandchildren, etc. In the long run, those things are far more important than what a vacation can do for you. Maybe I'm just rationalizing here, I don't know.

As I've said before, I've got much to be thankful for and I do realize how blessed I have been throughout this journey because I have seen how so many others have been overtaken by graft vs host disease that they cannot mange to do much of anything.

Up at 5 AM tomorrow - I so look forward to that every Wednesday and Thursday;)

Bob