December 11, 2008 8:45

I somewhat apologize for having no entry yesterday, but there really was nothing to comment about. I basically spent a quiet day at home - no visitors, no doctors appointments,....

Tomorrow morning, of course, is when the results of Monday's bone marrow biopsy will be revealed. The weather won't make the commute to Boston very easy; but we travel on main roads so I am not expecting any real problems. My wife and I were hoping that the new Dana Farber Center that opened recently in Londonderry, New Hampshire would ease the commute but my doctor said that it does not apply to my situation - so Boston forever remains our destination.

A quick observation....

there is no more hair appearing on my pillow in the morning so I guess that have dodged the bullet of completely losing my hair as I do have that layer of peach fuzz on top.

So, tomorrow, I will let you all know the results of the biopsy and, hopefully, what lies ahead in the near future. That is one of the most frustrating aspects of this entire process - I cannot plan for the future beyond, possibly, one week at a time. As of this moment, I don't even know if I will be home for Christmas and/or New Years. If there is an event that I would like to attend several months down the road, I have to pass it up as I have no idea what I'll be doing or where I'll be doing it. The doctors call all the shots and those shots are determined by test results.

Before I sign off for the day, I just wish to remind everyone once again of the bone marrow drive that is occurring on Saturday, December 13 from 10 AM to 2 PM at Hampshire Hills in Milford, NH. I do plan on being there at the beginning for some period of time. My daughter, Jennifer, has worked hard to pull this all together even to the extent of getting vendors to donate items for a raffle that is being held during the proceedings. I do know that there are some large furniture prizes and a host of other smaller items that will be given away. Please try to attend - someone's life may very well hinge on the fact that you came forward.

Bob

Devember 9, 2008 8:15

Not a whale of a lot to say today. The spot where the bone marrow biopsy was taken is rather tender unlike the previous 2 that I had. Of course, this will ultimately go away but you have to be a little careful when you sit down and sleeping on your back at night is a bit of a problem.

An appointment was made today for me to see the bone marrow specialist doctor next Tuesday.

On a more personal note, I was more that shocked to hear that my boss got laid off today. He was a hard worker and well respected by everyone for his fairness and for his genuine concern for everyone who worked for him. Through the years, I have come to realize that bosses like him are a rare breed and are to be much appreciated. I know that this is such a blow to the department and it will certainly do nothing to improve employee morale. He will be in my thoughts and prayers as he seeks new employment. This is truly a shame for he is such a good man! He will be sorely missed!

Bob

December 8, 2008 8:30 PM

Good news! My blood cell numbers are excellent! When you look at the counts as they currently stand, there is no indication of the disease. That's why it is necessary to look directly at the bone marrow to determine what is happening direcctly at the source.

That brings me to the fun part of the day! The bone marrow biopsy taken this morning. Since it was performed on an outpatient basis, I was not allowed to have any kind of general anesthesia - only a local such as you would get at the dentist. The first 2 times that it was done, I was an in patient so I got a little something to kind of put me in la-la land. Not so today! Needless to say of the 3 biopsies that I have had, this was the least "pleasant". However, I survived and I received word that there would be a very limited number of these in the future. Thank God for small favors!

The doctor also said that my resistance to infection is improving all the time but that I should still avoid large crowds and children. So, I can come and go as I please within reason - but who wants to go anywhere in this cold weather! The older I get - I find that I dislike this weather more and more! But, since the weather is not going to change - I think that I'm going to have to find some way to get younger! I have to admit that this peach fuzz that I have left for hair on the top of my head does not do a good job of keeping my head warm. I now have new admiration for all of you who buzz cut it or shave it altogether! This whole experience is changing my whole outlook on a lot of things!

Had some company bring over Kentucky Fried Chicken for dinner tonight and we had a great time. I always enjoy visitors!

So now we await the results of today's experience which will be known to us on Friday and also find out at that time what the next step is to be.

Bob

December 7, 2008 8:45 PM

Real quick today as there really is nothing of substance to write about.

Just had a few visitors and had a delicious lobster/steamer dinner. Makes me long for that hospital food all the more!

Of course, tomorrow morning is the bone marrow biopsy and there will be an update on my blood cell counts as well. I'll check in with that after I return from the hospital.

Still feeling great!!

Bob