August 12, 2011 11:00 PM

Very quiet!

But, as I mentioned the other day, I've added my postcard image. That may be the only highlight of the past few days.

On Wednesday, I had an appointment with the glaucoma doctor and everything was fine. I do not have to return until January.

As for the scleral lenses, I find that I am still getting used to putting them in. I have had only the one time where it took me only one try with each eye. For whatever reason, my right eye seems easier to do than my left one. As for the cloudiness, once on a while I have a good day where the cloudiness is not really a problem. I wish I knew what made the difference!

I'm still weak and tired but there is lots of cause for hope as a woman who has 20 weeks under her belt has noticed great improvement with her stamina. I am only half way there, so we'll be going to Boston twice a week into October. It would be great if the number of visits could decrease as the winter approaches.

However, I still cannot complain as I look at others who are undergoing treatment similar to mine. Most are either much younger - such a shame - or have suffered worse side affects than me.

I still enjoy my life with friends and family. That's what counts...

Bob

August 8, 2011 10:45 PM

Time for an update!

Even though there is not an awful lot to be updated, I can comment on a few things. The most relevant is the status of the scleral lenses. The good news is that they definitely improve my distance vision. I even got a replacement left lens on Saturday that does an even better job. However, because the distance is set properly, my close up vision is unacceptable unless I wear a pair of those drugstore "cheater" glasses. It's no big deal. But, without the lenses, I can read close up and see at a distance - even though the distance viewing is not as clear as with the lenses.

The major drawback of the lenses is that they tend to "cloud up". So, even though the vision is 20/20, it is not as crystal clear as it should be. This I'll discuss with the doctor when I go back on the 12th of September. There is, however, the upside to wearing the lenses which is that they do the job regarding keeping my eyes moist. There is less need for eyedrops. Now, the major function that eyedrops perform is to clear up the cloudiness. Maybe what I need is miniature windshield wipers to constantly clean the lenses.

The tiredness and weakness are still there. As I have been told, I'm still a little "early" in the photophoresis process and shouldn't look for any improvement for at least another month. My oncologist has approved continuing the treatment until November. That means twicw a week Boston trips at t least until that time. What fun! When winter starts, it will be more of a concern. We'll cross that bridge when we come to it.

Today, I did get a copy of the postcard featuring me to be used for upcoming October road race in Boston. I'll see what I can do about getting it on this blog. There are 5 of them altogether. I do know one of the other 4. It's really quite exciting.

On Saturday we are supposed to meet the team from Manchester that is running in the San Francisco marathon. I look forward to that as well.

As an aside, Friday was my grandson's 15th birthday. We ate outside at the health club restaurant located in his town. The grandchildren just seem to grow up so fast. In six months, he can drive a car(and he's counting down every last minute). I have no concerns about him, he is a very responsible young man.

It's just nice to be there to see these moments occur...

Bob