Just a quick update!
But a significant one. Yesyerday morning I spoke on the telephone to the fellow who was chosen to be a donor from the bone marrow drives that we had. It wasn't just that I was speaking to him on the phone, it was the fact that he was at Dana-Farber and actually donating while we spoke! It was to be at least a six hour time frame for him - not counting the preparation that he had to go through beforehand. He had the same observation that I did about what the fluid looked like - tomato soup!
I was really thrilled - but he sounded like he was absolutely beaming to be able to do something that could possibly save the life of another!
Otherwise, quiet times. My eyes are doing well. We are just waiting to get our ducks in a row before we can proceed with the testing, fitting, etc. That will be in a few weeks. Meanwhile, this week is the last one before the photophoresis starts. So I'm just going to be enjoying each day moreso because we won't have to make the trip to Boston. Starting June 6th, that all comes to an end and the fun begins.
New eyes, reworked blood - it will be an interesting summer...
Bob
May 23, 2011 11:50 PM
20/20!
We went to Mass Eye And Ear this morning to see the contact lens doctor. Basically, the visit is just to determine whether or not I am a good candidate for the lenses. In order to determine that, the doctor first examined my eyes (no shock there!) and then placed a couple of lenses in my eyes and, in combination with some handheld lenses that she had, corrected my eyesight in my right eye to 20/20!
In fact, according to the doctor, the only way to correct the issues with my right eye is with a contact lens of some dort - eyeglasses cannot do the trick. Thus, it was determined that I am an excellent candidate for the lenses.
What's the next step? First of all, they have to ascertain what my insurance will pay. Once that's determined, then several days have to be spent in outfitting me with lenses that are designed just for me and "training" me how to use them. Unfortunately, with the photophoresis treatments coming up, I have no clue how I am going to squeeze in "several" days. It's going to be a busy summer.
Ultimately, the lenses will designed for farsightedness so that I will require reading glasses. No problem there since that's what my current glasses are. The actual lenses are a little bigger than standard contact lenses and, most likely, will require the use of fewer eye drops. That would be a huge side benefit. I must admit that I did not feel the lenses in my eyes at all. Nor was there any issue getting them in or out. So, maybe my concerns about utilizing them are somewhat misguided.
All in all, a good day.
With any luck, by the end of the summer, I'll be in great shape...
Bob
We went to Mass Eye And Ear this morning to see the contact lens doctor. Basically, the visit is just to determine whether or not I am a good candidate for the lenses. In order to determine that, the doctor first examined my eyes (no shock there!) and then placed a couple of lenses in my eyes and, in combination with some handheld lenses that she had, corrected my eyesight in my right eye to 20/20!
In fact, according to the doctor, the only way to correct the issues with my right eye is with a contact lens of some dort - eyeglasses cannot do the trick. Thus, it was determined that I am an excellent candidate for the lenses.
What's the next step? First of all, they have to ascertain what my insurance will pay. Once that's determined, then several days have to be spent in outfitting me with lenses that are designed just for me and "training" me how to use them. Unfortunately, with the photophoresis treatments coming up, I have no clue how I am going to squeeze in "several" days. It's going to be a busy summer.
Ultimately, the lenses will designed for farsightedness so that I will require reading glasses. No problem there since that's what my current glasses are. The actual lenses are a little bigger than standard contact lenses and, most likely, will require the use of fewer eye drops. That would be a huge side benefit. I must admit that I did not feel the lenses in my eyes at all. Nor was there any issue getting them in or out. So, maybe my concerns about utilizing them are somewhat misguided.
All in all, a good day.
With any luck, by the end of the summer, I'll be in great shape...
Bob
May 22, 2011 11:50 PM
Contact!
Lenses that is and maybe or maybe not. Tomorrow we go back to Mass Eye And Ear to visit a third doctor there. My goal is to see them all! Anyway, we discuss the possibility of employing special a scleral shell lens for eye protection and, possibly, some better vision. Although, these lenses are not meant to be corrective.
Now, I have always despised the idea of shoving lenses in your eyes having heard of people who have has trouble with such things. Plus, these lenses are bigger than regular contacts - making them, in my estimation, even more difficult to put in and take out. Anyway, we find out tomorrow what the scoop will. be.
Otherwise, no problems or concerns over the past few days. My mother had the staples removed from the surgery that she had a few weeks ago - 21 in all! My sister said the the incision is huge! I can believe it when you have that many staples to remove. It appears that she will go home later this week from the rehab center. She has made a remarkable recovery.
On Friday night, we went to the annual bridge party that is held to have everyone get together and to hand out the prizes to the winners. Wonder of wonders, my wife and I finished first. It's not the first time that that has happened but we figured that we were nowhere in the running. As for the men's bracket, we finished upper middle and it didn't help that someone did not reurn the scores from one of our matches. It would not have put us in the money but our overall score would have been more respectable.
Saturday, it was granchildren's soccer and then to my sister-in-law's for dinner.
A good day; a good weekend; and, hopefully , a great Monday as well...
Bob
Lenses that is and maybe or maybe not. Tomorrow we go back to Mass Eye And Ear to visit a third doctor there. My goal is to see them all! Anyway, we discuss the possibility of employing special a scleral shell lens for eye protection and, possibly, some better vision. Although, these lenses are not meant to be corrective.
Now, I have always despised the idea of shoving lenses in your eyes having heard of people who have has trouble with such things. Plus, these lenses are bigger than regular contacts - making them, in my estimation, even more difficult to put in and take out. Anyway, we find out tomorrow what the scoop will. be.
Otherwise, no problems or concerns over the past few days. My mother had the staples removed from the surgery that she had a few weeks ago - 21 in all! My sister said the the incision is huge! I can believe it when you have that many staples to remove. It appears that she will go home later this week from the rehab center. She has made a remarkable recovery.
On Friday night, we went to the annual bridge party that is held to have everyone get together and to hand out the prizes to the winners. Wonder of wonders, my wife and I finished first. It's not the first time that that has happened but we figured that we were nowhere in the running. As for the men's bracket, we finished upper middle and it didn't help that someone did not reurn the scores from one of our matches. It would not have put us in the money but our overall score would have been more respectable.
Saturday, it was granchildren's soccer and then to my sister-in-law's for dinner.
A good day; a good weekend; and, hopefully , a great Monday as well...
Bob
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