It was an uneventful day!
I spent the bulk of my time painting my bathroom. It's great to see things can be spruced up with nothing more than a coat of paint. We bought some paint for our bedroom which I will start on sometime next week. I anticipate finishing the bathroom early in the week.
A nurse called from Dana-Farber to say that my creatinine was a little high which indicates that I should be drinking more water. When I informed the nurse that I was already drinking at least 80 ounces a day, she backed off somewhat because that is more than enough for one day. Since the situation arises as a direct result of the immuno-suppressants and I am cutting my dosage once again, we decided to just watch it for a month and see what things look like at the end of August. It's funny, but the solution to the problem is to get me off the drugs-not to simply keep on drinking more water. In a few months, hopefully, it will be a moot point as I should be off of the drugs.
I also asked her about the fact that my counts have remained rock solid. She said that, normally, they fluctuate up and down and, if someone gets an infection or has graft vs host disease symptoms and requires additional drugs these contribute all the more to the fluctuations. My case is highly unusual in that my counts quickly shot up to acceptable levels and have stayed there for months! This is a good indication that the bone marrow transplant is working like a charm.
But, as with the doctor, she said that they like to have patients like me because it makes their job that much easier. As she said, "it's all about us" :)
The people at Dana-Farber have been fabulous...
Bob
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