August 31, 2011 10:25 PM

Not my update!

I'm doing as well as usual. Nothing is new on the scene. Tomorrow is the end of week 13 of my photophoresis. With 27 treatments under my belt, I will have racked up over $250,000 in treatments costs. Not bad! And when you consider that this will probably extend into November, I'll be pushing over a $500,000 with no end in sight. The physician's assistant keeps insisting that I'm still new in the program and that it's going to take time before noticeable progress can be seen.

Anyway, this is more of an update for my son's condition. He's back at home after being released yesterday afternoon. Do they really know what his issues are? My wife and I think not. But, he is on medication to thin his blood and start to dissolve the clot. However, he also had excess around his lungs that they drained. But the doctors could not collectively agree that there was no problem with what the fluid. One said that there was aproblem while the other said exactly the opposite. So he's at home and we'll just have to wait and see what happens.

Otherwise, my impatience sets in and I wish to get back to some semblance of normalcy. Being tired and weak all the time is not where I want to be. There are things that I wish to do with my life that I just have to postpone because I'm not currently capable of doing them.

At least I have the opportunity to wait...

Bob