July 22, 12:10 AM

The only show in town!

Today marked a first for me as I was the only one getting a photophoresis treatment this morning. It was really quiet. The upside, of course, was the individualized treatment that I got. It makes you feel really special when you have four nurses crowding around you looking for something to do.

It's been seven weeks now and I can't say that I've found any real major changes to indicate that the treatment is working. As I said before, they use eight weeks as the starting point. So we'll see what happens.

Tonight we got to watch two of my granddaughters perform in a show at our local live performance theater in Manchester. It was the culmination of their two week camp at the theater and it really was a well done performance for children who are basically pre-teen and who have had on 9 days to rehearse for it. The two girls did really well. Maybe we have another Miley Cyrus(or two) in our midst!

Talking with the girls after the show, they were so animated and full of viatality as they discussed all the things that they want to do in life - play World Cup level soccer, go to college, start their own restaurant business, etc. I'm not sure how much of that I will be able to see, but it's great to see that they have dreams and goals and gives all of us a focus for the future as we strive to help them achieve their ambitions. It's especially significant when you realize that just over four years ago one of them coded twice and almost died. Living on borrowed time for me is nothing like the borrowed time that my granddaughter is enjoying. She is a remarkable child in many ways. One can only assume that God has a fantastic plan for this young lady.

It will be quiet for a few days until Tuesday when I go for round two of the scleral lens regimen. Meanwhile, there is nothing for me to do other than to practice opening my eyelids so that I can fit the devices(their word - not mine) in my eyes each and every time.

No rising at 5 AM Friday morning. Thank God...

Bob