Will it happen?
It's raining again today. It rained on Wednesday and Thursday as well. So, will the baseball game go on tonight or not? We'll see. The forecast is still iffy. Anyway, I'll report on all the exciting activities of the evening - the award ceremony, the first pitch, the game,... Or, whatever actually does occur.
We met another patient at the photophoresis center yesterday who had a bone marrow transplant 4 years ago. For at least a year things went very well until graft vs host disease began to set in and she began to get weaker and suffer from some hardening of the skin and muscles. The good news is that the treatment seems to be working for her. It took eight weeks to see any kind of results and she is up to thirteen weeks now.
Why do I mention this? Her situation somewhat mirrors mine and it gives me cause to feel that I can get back to being somewhat close to what I was before - not that I was Arnold Schwarzenegger! All the work that I was doing a year ago around the house would take me much longer to do today - though I could(and would) still do it.
I have another "first connection" call to make. The total continues to mount even though most people seem to be fortunate to get just one opportunity to make such a call. I know that I seem to get more from the calls than what I give so for me it is most certainly a pleasure to make these calls.
Three weeks down and nine more weeks to go of the twice a week photophoresis treatments. The actual treatment is nothing. The travel to and from Boston and the time of day(arising at 5:15) are the sticking points. However, as I've said before: "You do what you have to do."
Gotta go and warm up my pitching arm...
Bob
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