March 31, 2009 10:35 PM 58 days to go

Well, we've made it through the month of March - less than 2 full months to go. I've gotta hang in there. It does get somewhat frustrating when you can't really go anywhere or do anything and you feel fine. It seems like life is going on around you and, other than connecting via the internet or watching television, you have no part in it whatsoever other than to be an observer. I can see that I would go nuts if I were locked up in prison.

I guess that's why I felt so satisfied when I was able to help that friend of my wife's with her web page issues. She stopped by today and we went over what she needed to do. She was very relieved to see how easy it was for her to accomplish what she wanted to do.

Tomorrow is going to be somewhat of a pain in the neck at the clinic because we had to make a late appointment. My labs are set for 12:30 and the doctor's visit for 1:00. Given the fact that the place is a madhouse around noon time, neither one of these times can be expected to be happen. And, if we get really delayed, it means that we travel home during rush hour traffic which is always a lot of fun.

As an aside, on Friday we placed an order with our critical care provider for some heparin syringes that are used for my daily catheter flushing. Of course, the order arrived today and it was all screwed up. When you call them on the phone to correct the mistake, the voice over, while you wait for the one live person who works there, stated over and over again how proud they were about the "quality and excellence" of their service. I guess standards have been lowered over the years. Either that or we have all now become so numb to getting poor service that we are grateful for whatever we can get and just accept it as "quality".

Here I go - digressing again. But when I feel as well as I do, then I do get involved with all these people and it becomes a major part of my life. My advice to all of you - don't become severely ill. If the disease doesn't get you, then the incompetence of all the ancilliary support institutions you have to deal with will just drive you crazy. As the Kingston Trio(boy, am I dating myself here) sang in the song "Everglades", "if the skeeters don't get you, then the gators will".

Tomorrow I'll fill you all in on how the battle is going with the latest input from Dana-Farber...

Bob