February 19, 2009 10:00 PM 98 days to go

Water, water everywhere - but not a drop to drink is far from the watchword in this household. At each of the 5 times that I took my drugs during the day, I drank at least 10 oz. of water. Coupled with the 16 oz. that I drank at lunch and at dinner - I think that I am getting the required 60+ oz. under my belly - or should I say - through my kidneys?

This post is a little earlier because tomorrow we have to be at the Dana-Farber center in Boston by 7:00. So we'll be up around 5, I guess. Lot's of fun - but it's still better than being in the hospital.

So, how did my day 1 at home go? I spent most of the day alone as my wife had to be out of the house But, I did do 2 things. I put together a spreadsheet to keep track of all the drugs that I take, when I take them, and what the requirements are. Being on the computer, it will be easy to update as the drugs and/or doses and/or times change. The second is that I crafted a letter to my donor and forwarded it on to Dana-Farber in the hopes that they will pass it on to the donor.
Also, I took 2 deliveries of medical supplies (boy, it sounds like I'm in some foreign location awaiting the supplies to be dropped as part of some kind of airlift operation); read the newspaper; watched some TV; and surfed the web.

Whoever would have thought that I would ever be writing such a letter? With everything else being in excellent shape, I would never have guessed that I would ever be in a position like this.
But life deals us strange cards at times and we have to play with the hand that we've been dealt. Fortunately, I have enough behind me that I can continue to play with an excellent chance of winning.

I feel fine. This is especially amazing to me as I keep hearing stories of people who were very, very ill after getting their transplant. Not the case here. In fact, we had veal parmesan for dinner so I don't think that I am contending with nausea in any way.

I think that tomorrow will be a big day because it will offer me the first time to actually see how my counts are doing - when your are admitted, they just tell you that things are fine. I want to know what fine really means!

So, tomorrow night I'll let you know what I know...

Bob