There was no entry for yesterday as I really did not have much to say and I was somewhat bummed by the fact that the Patriots won but the Jets played like to Jets of the last 5 games and not the first 11. Good season for the Pats and nothing to be embarrased about - especially with all the injuries.
So......
today was the first day at the Norris Cotton clinic in Manchester. We have to iron out a few kinks - but, in general, it went well. They have very few patients who have a Hickman catheter and it took the nurse a little while to get used to the care and feeding of it. With some instruction from me we got through it. However, after initially doing the blood draw, she had to come back to me and do it once again as she had not taken enough tubes.
The good news was that everything was in order with the exception of my platelets count which was very low - and expected to be that way! So they had to call to a local hospital to get them. Since this was going to take a few hours, it offered us the opportunity to go home and return later. This is such a boon as compared to having to sit in the clinic waiting room in Boston until the proper medication arrives.
All in all, the nurses in the infusion area were very pleasant and professional and the facility was very nice. So, I think that the next few weeks will go a lot better.
While were at the clinic a phone message was left from the bone marrow doctor's office indicating that a schedule was being prepared for the transplant. Unfortunately, we could not hook up after that so I am sure that I will find out all the details tomorrow.
I have almost forgotten to once again thank the Milford NH Fire Department for a cash donation that followed up the very generous gas card donation that they made earlier. These people take giving and caring to the next level and it so often goes unnoticed - but it is surely not unappreciated. A heartfelt thanks from me goes out to all of them!
So tomoorow may be an eventful day as I, hopefully, find out what the longer term schedule will be.
All for now.....
Bob
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